In Dutch the word for ‘worries’ is the same as the word for ‘caring’.
The saying: ‘Zorgen moet je doen niet maken’ means something like: ‘The act of caring is better than worrying’.
This saying hung on our mirror for a long time. 
And that’s how it feels: there is enough to worry about (which we do) but it’s even more important to give good care to Vera.
We are so blessed with all the support from people around us; family, friends, neighbors, co-workers and members of our church.
Besides that, we are surrounded by many professionals. A big thank you to everyone and some links to the wonderful people and institutions that have had Vera in their care:
Wilhelmina kinderziekenhuis (WKZ)/ UMC Utrecht
Vera’s many medical appointments
Willem-Alexander kinderziekenhuis/ LUMC Leiden
Emma kinderziekenhuis/ AMC Amsterdam
